I love Dr. Richard Horowitz. He has treated countless Lyme patients with great success. He's in Hyde Park, New York. The video shows his book at the end. It's one of the first Lyme books I ever bought and has a ton of information in it. There are a lot of parts of it that will go right over your head. You can tell it was written by a doctor because it's very technical. He does a good job explaining it, though. He has written a new book that I pre-ordered that is written more for the layperson. It'll be out by the end of the year.
0 Comments
This week marks one year since I started treatment. It hasn't been easy. Just this past week my Lyme team made a major adjustment to my IV protocol and switched up some of my pills, too. Although, this month, my thyroid panels are all within normal limits, my blood sugar has been jumping around. It's usually in the hypoglycemic range, but there have been a few times it's been too high. Also, my blood pressure has been low. Yesterday, it was 98/68. I always had low blood pressure until the day I delivered our daughter. It was 100/60. It has been high ever since. A couple of years ago I gave up and let them put me on a low-dose calcium channel blocker to help regulate it. For years I've insisted that I do not have high blood pressure. It appears that is the case. Something has reversed. Here's something else that has reversed. For well over a decade I've had high cholesterol...over 220 at times. I also insisted that I didn't really have high cholesterol. I had it checked in October or November and it was below 180. It hasn't been that low in YEARS. I mentioned that to my Lyme team and they were quite intrigued. It seems that they've had patients whose cholesterol levels were over 300. While they were in treatment what happened? Their cholesterol levels fell. Apparently, there is some way the bacteria can manufacture cholesterol for their own use. How interesting is that?! You know what else is interesting? Take a look at the meds I've taken over the past year. This, of course, does not include the almost 60 injections of methylated B12 I gave myself or all of the IV meds I've had. That would probably fill a house. Keep in mind, though, that a lot of these are natural supplements because my Vitamin D was REALLY low, one was for liver support to counteract any effects of the meds, one supplement is for the MTHFR gene mutation that I have. Fifty percent of the population has that gene mutation. How many of you know if you do or don't? Of course, you can't forget the copious amounts of probiotics I've been on since the beginning. Most probiotics you find have 1 billion units of bacteria per pill unless you buy from a vitamin shop. My treatment protocol has me taking around 100 billion units every day. So, no...not all of these bottles are antibiotics and antifungals. I chose to go the integrative route which includes both conventional and holistic meds. So, the burning question everyone has is..."Are you feeling any better?" Chances are, when I am, I'll be shouting it from the rooftops. I'm not shouting yet and I can barely climb the stairs, much less get to the roof. Again, you have to understand that this treatment makes you worse before you get better. You start to get better and they change the meds because the bacteria are smart and hide once they figure out the med cycle and types of meds. Then...they change your meds to hit another co-infection and it makes you worse before you start to get better. This is a long, long road. I've had this for 33 years, which is much longer than most people.
You can ask me anything, but if I haven't said I'm feeling better, or that I'm backing off of the meds, or getting the PICC line removed...nothing has changed. It all goes right here so I only have to say it once. Fatigue and exhaustion are the hardest things I deal with other than brain fog and confusion. It takes anywhere from several days to a couple of weeks to do blog post because it's extremely hard for me to concentrate. So, please don't get upset if you ask me something and I direct you here because this is where you're going to find everything. |
AuthorMy name is Deanna...proud Navy wife, mom to one, follower of the One, pianist, registered nurse, avid knitter, crocheter, reader, & lover of languages. I also love to write. I have had undiganosed Lyme disease for 32 years following a tick bite when I was 11. Archives
March 2017
Categories
All
|