I've had to set a lot of new expectations for myself. If I can't do it, I can't do it. And, let me tell you... Most of the time, I can't do it. Just this past week I had a couple of pretty good days. I was definitely not functioniong at 100%, but I also wasn't functioning at 25%, and I still took breaks when I could. Those couple of days are promising, but they won't last and I know they won't. Lyme is all about cycles. Bacterial growth cycles. Bacterial die-off cycles. Pain cycles. Messed-up sleep cycles. Brain fog cycles. Mood swing cycles. Rage cycles. Fluctuating body temperature cycles. There are too many to list. I don't have control over any one of those cycles. I just have to let them run their course. They are different for every person with Lyme. Some people have cycles that last a couple of weeks, 4-6 weeks, or a couple of months. Mine tend to go on and on for months. Just this latest one with my thyroid is taking forever to work itself through to the end. After that one is over, another one will start. Which system of my body is next? I don't know. It's made its way through all of them. You cannot talk to one person with Lyme and then talk to the next and expect to hear the same story.
All of us handle Lyme differently because Lyme handles us differently. Even with those differences, I know one thing that's the same for all of us. Bad days far outweigh the good until the treatment takes hold and the tide starts to turn. Right now, my good days feel like they only happen every four years.